Friday, December 9, 2011

ALS Helpful Links A-Z

A
ALSA National Homepage
ALSA Advocacy
ALSA Annual Report 
ALSA Certified Centers
ALSA Certified Clinics
ALSA Exchange Monthly Magazine 
ALSA Helpful Links
ALSA Living with ALS Manuals
ALSA Local Chapters
ALSA Research Today Publication
ALSA Vision Magazine

AAC Devices - Dynavox
AAC Devices - Speakbook
AAC Devices - Tobii

ADA Homepage

ALS CDC Registry

Accessibility - NCA Homepage

Accessible Clothing - Adaptations by Adrian
Adaptive Clothing - Easy Access
Adaptive Clothing Showroom
Adaptive Clothing - Silvert's
Adaptive Clothing - Territory Ahead
Adaptive Clothing - Various Links

Adaptive Equipment - Disability Products
Adaptive Equipment - Standers
Adaptive Equipment - Patterson Medical
Adaptive Equipment - Wright Stuff 

Assistive Technology

Arimoclomol

B
Bathroom Mockup 

Bipap

Blog - Able to Travel
Blog - ALS Advocacy
Blog - ALS Everyday Living
Blog - ALS Independance
Blog - ALS Spread the Word
Blog - ALS TDI
Blog - ALS Untangled
Blog - Assistive Technology
Blog - BioWorld
Blog - Friends 4 Eric 
Blog - Healthy Barbs
Blog - Life with ALS
Blog - Making Connections
Blog - Quadbliss.com 
Blog - Smartass Cripple
Blog - You Start with a Tube 

C
Clinical Trials - CDC Website
Clinical Trials -NEALS Hotline
Congressional Media Guide

D
Dexpramipexole

Diaphragmatic Pacer

F
Familial ALS (fALS)
fALS Registry

Family Leave Act

FDA

G
Gene - SOD1

Gene Database - ALS Online Genetics Database

Gene Testing - Athena Diagnostics
Gene Testing -  Genetic Studies in ALS

H
Hospice - National Hospice and Pallative Care Association 

L
Lifts - Bruno
Lifts - Ceiling 
Lifts - Floor 

Lou Gehrig

M
MDA ALS Homepage 
MDA ALS Advocacy
MDA Augie's Quest 
MDA Annual Report 
MDA ALS Clinics 
MDA ALS Equipment Assistance
MDA ALS Everyday Life Manual 
MDA Local Offices
MDA ALS News Archives
MDA ALS Newsmagazine
MDA ALS Publications

Manuals - ALSA
Manuals - MDA

Medical Alert Systems - Alert1 
Medical Alert Systems - Lifestation
Medical Alert Systems - Philips Lifeline

Medicare - Guide to Coverage
Medicare Interactive 

Message Board - ALS Forums
Message Board - ALS TDI Forum
Message Board - MND Forum
Message Board - Patients Like Me 

Motor Neuron Disease Association (UK)

N
National Institute of Health (NIH)
NIH Disease Funding

P
Patients Like Me Homepage

PEG
PEG Nutrition - Blenderized Diet 
PEG Nutrition - Ainsley Rae 
PEG Nutrition - Lucy's 
PEG Nutrition - VitaMix

Podcasts/ Webinars - ALSA
Podcasts/ Webinars - ALS TDI
Podcasts/ Webinars - MDA

R
Research Organizations - ALS TDI 
Research Organizations - California ALS Research NW
Research Organizations - Columbia

Research Organizations - Forbes Norris
Research Organizations - Johns Hopkins 
Research Organizations - Methodist Hospital
Research Organizations - NEALS
Research Organizations - Northwestern
Research Organizations/ Foundations - Project ALS
Research Organizations - UMass
Research Organization - U of Miami (FL)

Riluzole

S
Scholarships - ALS Family Foundation (NE Only)
Scholarships - Ameriglide Achievers
Scholarships - Bentson Fund (Mass only)
Scholarships - Deshae Lott
Scholarships - Eric Obermann Foundation
Scholarships - Eric's Vision
Scholarships - Friends of Pam
Scholarships - Looking Glass
Scholarships - Merfeld Foundation
Scholarships - Rascals Foundation
Scholarships - SpinLife

Social Security - Presumptive Disability Rule
Social Security - TERI Information for ALS
Social Security Disability Homepage
Social Security Disability Publications 

Support Groups
 
T
Tracheostamy

Travel Lifts - Liko
Travel Lifts - Molift

Travel Tips

V
Van (wheelchair)

Veterans - VA
Veterans - PVA

Voice Banking - U Delaware

Video Tributes - Life Chronicles

Video - UCLA Ask the Experts

W
Wheelchair
Wheelchair Medicare Policy
Wheelchair Ramps

Wheelchair (Invacare)
Wheelchair (Permobil)
Wheelchair (Pride)